{"id":30297,"date":"2017-08-03T10:00:21","date_gmt":"2017-08-03T08:00:21","guid":{"rendered":"https:\/\/solkes.com\/?p=30297"},"modified":"2025-09-03T12:21:39","modified_gmt":"2025-09-03T10:21:39","slug":"a-new-hope-2","status":"publish","type":"post","link":"https:\/\/solkes.com\/en\/leaving-a-mark\/2017\/08\/a-new-hope-2\/","title":{"rendered":"A New Hope"},"content":{"rendered":"<p><span style=\"color: #138a8d;\">N<\/span>o illness is pleasant. Even less so one in which you see a person fight with all their strength, struggling as they fade before the eyes of those around them. This is the fight against cancer. The battle against childhood cancer has been a challenge for many years. For some, it is curable, but a high number of diagnosed children die from factors that could be prevented.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>The Mar\u00eda Jos\u00e9 Foundation<\/strong><\/span><\/h3>\n<p>The Mar\u00eda Jos\u00e9 Foundation was born from a deeply personal reason: a battle between life and death that was lost too soon. A fight that tragically ended with Mar\u00eda Jos\u00e9\u2019s life at a very young age. Her struggle was marked by the pain of illness and the helplessness faced with shortcomings in the treatment provided.<\/p>\n<figure id=\"attachment_12578\" aria-describedby=\"caption-attachment-12578\" style=\"width: 996px\" class=\"wp-caption aligncenter\"><img fetchpriority=\"high\" decoding=\"async\" class=\"size-solkes_horizontal wp-image-12578\" src=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_05.jpg\" alt=\"\" width=\"996\" height=\"601\" srcset=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_05.jpg 996w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_05-300x181.jpg 300w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_05-768x463.jpg 768w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_05-320x193.jpg 320w\" sizes=\"(max-width: 996px) 100vw, 996px\" \/><figcaption id=\"caption-attachment-12578\" class=\"wp-caption-text\">Fundaci\u00f3n Maria Jos\u00e9 \u00a9 Solkes<\/figcaption><\/figure>\n<p>These shortcomings were reflected in the management of treatment at home or day-to-day with special care, as well as shared experiences with other parents.<\/p>\n<figure id=\"attachment_12572\" aria-describedby=\"caption-attachment-12572\" style=\"width: 299px\" class=\"wp-caption alignright\"><img decoding=\"async\" class=\"size-solkes_vertical wp-image-12572\" src=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_02.jpg\" alt=\"\" width=\"299\" height=\"480\" srcset=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_02.jpg 620w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_02-187x300.jpg 187w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_02-299x480.jpg 299w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_02-374x601.jpg 374w\" sizes=\"(max-width: 299px) 100vw, 299px\" \/><figcaption id=\"caption-attachment-12572\" class=\"wp-caption-text\">Fundaci\u00f3n Maria Jos\u00e9 \u00a9 Solkes<\/figcaption><\/figure>\n<p>It must be said, Mar\u00eda Jos\u00e9 was supported by excellent doctors, legal assistance, psychologists, nutritionists, and family. What was missing was guidance from an entity that could direct parents through the treatment process.<\/p>\n<p>The foundation\u2019s mission is to remove barriers for children diagnosed with onco-hematological conditions, regardless of their place of origin, treatment institution, socioeconomic level, or age under 18.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> Why was the Foundation created?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> The Mar\u00eda Jos\u00e9 Foundation was born from the experience of the Saavedra Bello family during the diagnosis and fight for life of their little Mar\u00eda Jos\u00e9, who passed away at 28 months old. Yipsel Bello, mother of this brave little girl, inspired by this experience, created the Foundation to provide children and adolescents diagnosed with cancer with services and support complementary to medical treatment, which in many cases improves adherence and survival outcomes.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>A Health System in Crisis<\/strong><\/span><\/h3>\n<p>Unfortunately, the Colombian health system is in crisis. Its economic-based insurance model forces patients to endure delays (due to the high cost of treatments) and denials of various health services imposed by administrators. In February 2015, the Ombudsman\u2019s Office revealed that 60% of children with cancer die due to lack of medical attention.<\/p>\n<p>Currently, childhood cancer is considered a curable disease, and its treatment has been one of modern medicine\u2019s milestones. However, shortages of medications and delayed care contribute to higher mortality. It\u2019s unacceptable.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> What problems do children diagnosed with cancer face in Colombia?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> The main problem for a child diagnosed with cancer is access to healthcare under conditions of timeliness, accessibility, affordability, comprehensiveness, and quality as guaranteed by Law 1388.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>The Childhood Cancer Law<\/strong><\/span><\/h3>\n<p>It was hard to believe, but Colombia has a Childhood Cancer Law.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> What is the Childhood Cancer Law?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> It is the law passed by the Colombian National Congress in 2010 (Law 1388) to guarantee rights and services for the healthcare of children and adolescents diagnosed with cancer, aiming to reduce the mortality rate in this population.<\/p>\n<p>It regulates issues such as: databases, insurance, comprehensive care models, healthcare services, integral support, monitoring, and follow-up. This means that all children under 18 with a confirmed cancer diagnosis, at any stage or type, are entitled to all necessary services once their diagnosis is confirmed.<\/p>\n<figure id=\"attachment_12580\" aria-describedby=\"caption-attachment-12580\" style=\"width: 996px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" class=\"size-solkes_horizontal wp-image-12580\" src=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_06.jpg\" alt=\"\" width=\"996\" height=\"601\" srcset=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_06.jpg 996w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_06-300x181.jpg 300w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_06-768x463.jpg 768w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_06-320x193.jpg 320w\" sizes=\"(max-width: 996px) 100vw, 996px\" \/><figcaption id=\"caption-attachment-12580\" class=\"wp-caption-text\">Fundaci\u00f3n Maria Jos\u00e9 \u00a9 Solkes<\/figcaption><\/figure>\n<p>These services are provided by pediatric cancer units of their health insurance or territorial entity. Families also have the right to preventive treatments to ensure the child\u2019s therapy is effective. Care includes consultations, diagnostic tests, follow-ups, medications, and surgeries\u2014all provided in accordance with the mandatory health plan.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> How do you help these children?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> Our goal is to complement medical treatment through social support; by raising awareness, educating, and guiding caregivers, families, society, and the state. We aim to improve the quality of life for children diagnosed with cancer, especially the most vulnerable, reducing barriers to treatment. We are the only organization in Bogot\u00e1 working without exclusion, regardless of health insurance, social strata, or cancer type.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>How does the Foundation operate?<\/strong><\/span><\/h3>\n<p>The foundation pioneered Colombia\u2019s plastic cap collection campaign to provide mobility and nutrition support, preventing treatment abandonment. They also created the \u201cMar\u00eda Jos\u00e9 Doll,\u201d a versatile toy designed to help children and caregivers understand medical, psychological, and diagnostic processes, reducing stress and ensuring better treatment adherence.<\/p>\n<p>Other programs include \u201cPlan Padrino Apapachando,\u201d offering monthly support to beneficiaries and donors with psychological, legal, and nutritional assistance. \u201cProyecto Aventurero\u201d provides mobility equipment and recreational activities for children and caregivers in specialized centers, fostering dignity, love, and social integration.<\/p>\n<figure id=\"attachment_12574\" aria-describedby=\"caption-attachment-12574\" style=\"width: 996px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" class=\"size-solkes_horizontal wp-image-12574\" src=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_03.jpg\" alt=\"\" width=\"996\" height=\"601\" srcset=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_03.jpg 996w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_03-300x181.jpg 300w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_03-768x463.jpg 768w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_03-320x193.jpg 320w\" sizes=\"(max-width: 996px) 100vw, 996px\" \/><figcaption id=\"caption-attachment-12574\" class=\"wp-caption-text\">Fundaci\u00f3n Maria Jos\u00e9 \u00a9 Solkes<\/figcaption><\/figure>\n<p>Having complete information on how to face these illnesses and survive the process with integrity is essential. With this in mind, they established the only Latin American National Congress on Childhood Cancer for caregivers.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> Do you support only the sick children or their families as well?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> Our social support services are for both children diagnosed with cancer and their families. Psychological support and recreational activities include family participation.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> What are your goals?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> Current and future programs aim to complement medical treatment, improving adherence and ultimately increasing national childhood cancer survival rates.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> What have you achieved so far?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> The FMJ is recognized as a local leader in childhood cancer civil organizations. Its main achievement, however, is improving the quality of life and well-being of children, who are especially grateful.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>What\u2019s left to do<\/strong><\/span><\/h3>\n<p>Despite opening doors for children with cancer and their families, much remains. FMJ aims to become the national reference in childhood cancer and is preparing to establish a major national center for comprehensive services.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> Why is it necessary to help children in Colombia and worldwide?<\/p>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> Due to their natural vulnerability, society has a constitutional duty to protect and support children. Conditions such as illness, malnutrition, and insecurity require intervention from both state agencies and civil society to improve children\u2019s living conditions.<\/p>\n<p><span style=\"color: #138a8d;\"><strong>Solkes:<\/strong><\/span> Any message for readers?<\/p>\n<figure id=\"attachment_12570\" aria-describedby=\"caption-attachment-12570\" style=\"width: 374px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\"size-solkes_horizontal wp-image-12570\" src=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_01.jpg\" alt=\"\" width=\"374\" height=\"601\" srcset=\"https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_01.jpg 620w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_01-187x300.jpg 187w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_01-299x480.jpg 299w, https:\/\/solkes.com\/wp-content\/uploads\/2017\/08\/fundacion-mariajose-1708_01-374x601.jpg 374w\" sizes=\"(max-width: 374px) 100vw, 374px\" \/><figcaption id=\"caption-attachment-12570\" class=\"wp-caption-text\">Fundaci\u00f3n Maria Jos\u00e9 \u00a9 Solkes<\/figcaption><\/figure>\n<p><strong><span style=\"color: #138a8d;\">F.M.J:<\/span><\/strong> We often dream of a better world and think, \u201cIf it were me, I would\u2026 I would say\u2026 I would change\u2026\u201d But it\u2019s not about staying in idealistic phrases\u2014it\u2019s about taking action from our feelings, passion, reason, and soul, starting with ourselves and extending it to family, friends, and community.<\/p>\n<p>Currently, they are developing \u201cI Am an Opportunity for Change for Children with Cancer in Colombia,\u201d aimed at coordinating all actors involved in childhood cancer care to improve training, guidance, and reduce delays in comprehensive care.<\/p>\n<p>They are also working on \u201cAttending and Understanding Children with Cancer in Colombia,\u201d which seeks to improve healthcare conditions through awareness, training, and commitment from institutions providing pediatric cancer care.<\/p>\n<h3><span style=\"color: #138a8d;\"><strong>The Fight Continues<\/strong><\/span><\/h3>\n<p>This initiative will start soon, expected to make a difference through a successful care model in their city.<\/p>\n<p><span style=\"color: #138a8d;\">T<\/span>he fight against childhood cancer depends not on a single organization, but on everyone. Sadly, many families have lost a child to this disease. True success is not measured by the changes you achieve externally, but by the changes you create from within.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>No illness is pleasant. Even less so one in which you see a person fight with all their strength, struggling as they fade before the eyes of those around them. This is the fight against cancer. The battle against childhood cancer has been a challenge for many years. For some, it is curable, but a [&hellip;]<\/p>\n","protected":false},"author":76,"featured_media":22868,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[66],"tags":[801],"class_list":["post-30297","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-leaving-a-mark","tag-colombia-en-2"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - 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Estudi\u00f3 Comunicaci\u00f3n Social con \u00e9nfasis en Periodismo en la Pontificia Universidad Javeriana de Bogot\u00e1, Colombia. Desde muy joven sinti\u00f3 una profunda pasi\u00f3n por contar historias, explorar el mundo y dar voz a quienes no la tienen. Su compromiso con los Derechos Humanos ha sido una constante en su trayectoria, participando activamente en proyectos sociales desde temprana edad. Este inter\u00e9s se refleja en el enfoque editorial de Solkes, una revista que prioriza el periodismo independiente, la diversidad cultural y la profundidad narrativa. Laura naci\u00f3 en Bogot\u00e1, vivi\u00f3 tres a\u00f1os en Madrid, Espa\u00f1a, y desde el verano de 2010 reside en Alemania. 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